NURSES, GASTRIC SPECIALIsts, anyone in the medical Field please please ANSWER this question,!?
how do you explain this…there is a male relative of mine who has had chronic stomach pain since he was young, he also had a swollen and expanding stomach, when doctors finally opened up they found fluid filled bags growing on his intestines, all over, they were afraid it was cancer so they took a biopsy but it wasn’t, so they removed the fluid filled bags, but they had NO IDEA, NO EXPLANATION OF WHAT IT IS, THEY HAD NEVER SEEN ANYTHING LIKE IT.. a few years later, same symptoms they opened him up again and Found the same fluid filled bags, one the size of a gallon of milk! they removed them and now in his early thirties the same symptoms are reoccurring, please help us, what could this be, any idea will help, doctors they have spoken to have no idea no suggestions they say maybe he was born with it……any bit of info to lead us in the right direction is what we need! please help!
thank you so much in advance!!
they are on the outside of the intestines
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I can only take a stab at this, thinking possible Juvenile familial polyposis, a hereditary condition. Maybe Peutz-Jeghers syndrome. But polyps and hamartomas generally are not fluid filled.
One of the problems with this class of questions, not only on Y/A but at any curbstone, is that non-medical terms are often given to families by doctors with the thought that they can be better understood. To my mind, this only confuses things further.
Are the fluid filled bags (cysts) forming on the INSIDE of the intestines or the OUTSIDE?
It sounds like a genetic disorder, and you would probably be able to get more information if you spoke to your relatives doctor.
Another thought is SOD. Sphincter of Oddi Dysfunction. The sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.
When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.
SOD is an uncommon disease, so it often takes a while for the diagnosis to be made. Typically, patients who suffer from biliary colic pain or recurrent pancreatitis are investigated for gallstone disease, and many are sent to surgery for gallbladder removal. In most people, gallstones are indeed the causative factor and the pains do not recur. In a small minority of patients, however, the pain continues. It is in these patients that further investigations are done, specifically to evaluate for SOD.